Patient Update:
As per the letter from Jo Churchill, Parliamentary Under Secretary of State for Primary Care and Health Promotion
NHS Digital has paused the collection of this data, to provide more time to engage with GPs, patients, health charities and others, and to strengthen the plan, we are not setting a specific start date for the collection of data, and no data will be extracted for this purpose until:
- the ability to delete data if patients choose to opt-out of sharing their GP data with NHS Digital, even if this is after their data has been uploaded
- the backlog of opt-outs has been fully cleared
- a Trusted Research Environment has been developed and implemented in NHS Digital
- patients have been made more aware of the scheme through a campaign of engagement and communication
With regards to opt outs – We are waiting for the revised information from NHS Digital however;
- Patients are NO longer required to complete a Type 1 opt-out by the 1st September (to ensure their GP data will not be uploaded)
- NHS Digital will create the technical means to allow GP data that has previously been uploaded to the system via the GPDPR collection to be deleted when someone registers a Type 1 opt-out
- The plan to retire Type 1 opt-outs will be deferred for at least 12 months while we get the new arrangements up and running, and will not be implemented without consultation with the RCGP, the BMA and the National Data Guardian
We will continue to keep Patients informed of the changes when updated by NHS Digital
Please refer to the enclosed link for more information;
